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ArticlePeer ReviewedOpen AccessPlagiarism Passed
Paper ID:10.55041/IJSREM38597

Empowering Healthcare Professionals in Rare Disease Awareness through the Hidoc Dr. Platform: A Case Study on Hunter Syndrome Campaign

Stream/Area:

-

Subject:

-

Paper ID:

10.55041/IJSREM38597

Volume:

8 |

11 |

Nov 2024

Pages:

Publication Frequency:

Monthly (12 issues per year)

DOI
Digital Object Identifier
10.55041/IJSREM38597

License:International Journal of Scientific Research in Engineering and Management follows the Creative Commons Attribution 4.0 (CC BY 4.0) License, allowing free use and distribution with proper attribution.

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Authors

AS

Asma Shaikh

DSG

Dr. Sonali Gholap

VG

Varun Gadia

AM

Arina Mullick

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Abstract

Hunter Syndrome, or Mucopolysaccharidosis II (MPSII), is a rare, progressive metabolic disorder caused by a deficiency in the enzyme iduronate-2-sulfatase, affecting approximately 0.69 to 1.19 per 100,000 live births. Timely diagnosis and intervention, particularly through Enzyme Replacement Therapy (ERT), are crucial for enhancing patient outcomes. This case study examines a digital campaign that utilized the Hidoc Dr. platform to increase disease awareness and educate healthcare professionals (HCPs) in India, with a focus on pediatricians, ENT specialists, and geneticists. Through a coordinated omnichannel approach—including apps, websites, webinars, email, and telecalling—the campaign achieved notable engagement metrics, surpassing its initial goals with 23,371 HCPs reached, 24,562 impressions, and a click-through rate (CTR) of 5%. These results demonstrate the effectiveness of digital engagement in educating HCPs on rare diseases like Hunter Syndrome, ultimately aiding early detection and management.

KEYWORDS

Hunter Syndrome MPSII rare disease awareness healthcare professionals digital engagement Hidoc Dr

Cite This Article

Asma Shaikh, Dr. Sonali Gholap, Varun Gadia, Arina Mullick, "Empowering Healthcare Professionals in Rare Disease Awareness through the Hidoc Dr. Platform: A Case Study on Hunter Syndrome Campaign," International Journal of Scientific Research in Engineering and Management, vol. 8, no. 11, Nov 2024. https://doi.org/10.55041/IJSREM38597

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Publication Date

11/15/2024

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Double-Blind Peer Review

Review Rounds: 2

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The authors declare no conflict of interest related to this research work.

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