Empowering Healthcare Professionals in Rare Disease Awareness through the Hidoc Dr. Platform: A Case Study on Hunter Syndrome Campaign
Asma Shaikh, Dr. Sonali Gholap, Varun Gadia, Arina Mullick
Affiliation Details:
Author 1 - Asma Shaikh
Designation - Medical Content Team Lead
Institution/ company - Infedis Infotech LLP
Email Id - asmashaikh@hidoc.co
Address - Infedis Infotech LLP Office 108, Suyog Center, Gultekdi, Pune- 411 037
Author 2 – Dr. Sonali Gholap
Designation – Medical content writer
Institution/ Company - Infedis Infotech LLP
Email Id - sonaligholap@hidoc.co
Address - Infedis Infotech LLP Office 108, Suyog Center, Gultekdi, Pune- 411 037
Author 3 – Arina Mullick
Designation – Medical Content Lead
Institution/ Company - Infedis Infotech LLP
Email Id - sarinamullick@hidoc.co
Address - Infedis Infotech LLP Office 108, Suyog Center, Gultekdi, Pune- 411 037
Author 4 – Varun Gadia
Designation – Chief Operating Officer
Institution/ Company - Infedis Infotech LLP
Email Id - varun@hidoc.co
Address - Infedis Infotech LLP Office 108, Suyog Center, Gultekdi, Pune- 411 037
Abstract:
Hunter Syndrome, or Mucopolysaccharidosis II (MPSII), is a rare, progressive metabolic disorder caused by a deficiency in the enzyme iduronate-2-sulfatase, affecting approximately 0.69 to 1.19 per 100,000 live births. Timely diagnosis and intervention, particularly through Enzyme Replacement Therapy (ERT), are crucial for enhancing patient outcomes. This case study examines a digital campaign that utilized the Hidoc Dr. platform to increase disease awareness and educate healthcare professionals (HCPs) in India, with a focus on pediatricians, ENT specialists, and geneticists. Through a coordinated omnichannel approach—including apps, websites, webinars, email, and telecalling—the campaign achieved notable engagement metrics, surpassing its initial goals with 23,371 HCPs reached, 24,562 impressions, and a click-through rate (CTR) of 5%. These results demonstrate the effectiveness of digital engagement in educating HCPs on rare diseases like Hunter Syndrome, ultimately aiding early detection and management.
Keywords:
Hunter Syndrome, MPSII, rare disease awareness, healthcare professionals, digital engagement, Hidoc Dr. platform, Enzyme Replacement Therapy, early diagnosis, HCP education, omnichannel marketing
